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New study to assess potential indicator of HDFN recruiting patients
A new observational study in China aims to evaluate the utility of neonatal carbon monoxide concentrations in diagnosing and ...
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Rare Disease Day: Why it matters and how to get involved
The first Rare Disease Day was organized by the European Organisation for Rare Diseases in partnership with dozens of patient ...
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Rare Disease Day 2025: 10 recent FDA approvals for rare diseases
In honor of Rare Disease Day, here are 10 new treatments approved by the FDA to treat rare diseases over the past year.
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How serious is the risk of jaundice in newborns?
Jaundice commonly occurs in newborns, with up to 80% of neonates experiencing symptoms. In most cases, jaundice is not ...
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Understanding ‘glass child’ syndrome and how to avoid it
Learn more about 'glass child' syndrome and how it can affect the sibling of a child who has higher medical needs.