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How to Diagnose SCLERODERMA
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How serious is scleroderma? Like any chronic condition, scleroderma can be serious. Its impact depends on which parts of the body are affected and how severely. Early and accurate diagnosis, together with the right medical care, can help manage symptoms and reduce the risk of long-term or irreversible damage. Awareness, timely care, and support make a real difference. Download our FREE brochure about Understanding and Managing Scleroderma today to learn more! #Scleroderma #SclerodermaAwareness |
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Check out this video: Grace shares how scleroderma shaped her life and fundraises for a cure 🎥 At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure. Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light
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Want to learn how to ease some scleroderma symptoms without medications? Check out this 2024 Patient Forum highlight 🎥 In this clip from the 2024 Patient Forum, Dr. Ankoor Shah (Associate Professor of Medicine, Duke University) reviews options for the non-pharmacological management of systemic sclerosis. His session covers innovative approaches for managing Raynaud's Phenomenon, digital ulcers, GI symptoms, joint pain, contractures, and fatigue. To learn more about symptom management in systemi
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Dr. Elana J. Bernstein, of Columbia University Irving Medical Center, breaks down exactly how #Raynauds phenomenon works. #RaynaudsAwarenessMonth Raynaud’s phenomenon is a condition that results in decreased blood flow to your fingers and toes resulting in color changes. For nearly 90% of people living with #scleroderma, this is a complication that they live with and must manage. This explanation from Dr. Bernstein is from a session originally shared in our 2023 Patient Forum, a virtual event fo
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Did you know certain foods can worsen gastroesophageal reflux disease (GERD) symptoms, especially for those living with scleroderma? Check out this clip from Dr. McMahan's webinar to learn more! 🎥 In this clip from the webinar "Gastrointestinal Involvement in Systemic Sclerosis", Dr. Zsuzanna McMahan (Co-Director of Scleroderma Program, University of Texas Health Science Center at Houston) dives into how diet plays a role in causing GERD symptoms and shares actionable tips to help you avoid pot
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Check out this life hack video from Kierra, who shares how she gets her socks on! 🧦 To kick off Scleroderma Awareness Month, we shared life hacks like Kierra's—submitted by members of the scleroderma community—during our the SRF Patient Forum on June 2. We’re so grateful to everyone who contributed these creative tips for living with scleroderma. Watch the full video on our YouTube channel 🎥 : https://www.youtube.com/watch?v=ot3fBw6yd_U It's not too late for you to get involved this month! We
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